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The Remarkable Seth Cook

Posted: Tuesday, June 26, 2007 5:23 PM by Dateline Editor

by Fred Rothenberg, Dateline Producer

I learned a lot from Seth Cook. And he was only 11 years old.

When I first met Seth for a Dateline story, he was racing his toy truck down the hill in front of his house in Darrington, Wash. Because he was just 3-feet tall and would never get any bigger, he was actually "on" the truck, riding down the hill. I was scared for him, but he had mastered the move and showed no fear.

It was Seth's lot in life, as teacher, that he taught so many people not to worry about him and enjoy him for who he was.

Who he was, was so much more than just a boy with progeria, the rare disease that ages children prematurely. Except for his wisdom beyond his years, he would never grow up ... just grow older.

He was a joyful pre-teen who loved playing video games and watching his hyperactive dog crash-land trying to reach an elusive bubble. Oh, did that make him laugh as the dog -- who was not hurt -- landed with a thud.

But that wasn't his only type of infectious laugh. Anyone who watched him play a cutthroat game of Monopoly will remember that infamous cackle as he successfully maneuvered past enemy properties and collected 400 bucks. Then we'd all laugh as he fanned himself with his new-found pile of cash.

But we also cried when he announced to correspondent Rob Stafford, "I can't wait to get to heaven." It had gummi bears, chocolate rabbits and no limitations on the fish he would catch, he said. His late grandfather was there, too.

As we all wanted, Rob said he wanted Seth to wait ... to wait long enough for a cure for progeria.

Well, there's a big hole on earth today and a bigger addition to heaven.

Seth Cook died Monday, a month before his 14th birthday. His huge heart finally gave out on him.

As his mother, Patti, said in announcing his passing: "He will be missed by so many as there were so many lives he touched."

Dateline and our viewers were honored to be among the people he touched.

For more information, visit The Progeria Research Foundation

 

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Our hearts go out to you and your family.

May you know were touched by an angel on earth.

God bless and keep you.
Deeply,
Jorjann Chezem
What a wonderful boy he was so alive and he made people aware of the wonderful life you can have even with a illness.. May god bless him and his family He is gods child now..
I will always remember the story on Seth Cook. Not because he was another child battling a life threatening disease but simply his spirit and the courage he displayed while dealing with so much physical pain. Yes, a little boy in a grown up body. But in the end, a little boy with the courage that most us hope to have when the final bell is rung.    
I've been following Seth's life through your reports and am so sorry about his passing. My heartfelt prayers go out to Seth and everyone that loved him and he loved back.
Safe journey, Seth !   Enjoy being a Free Spirit in a New Land.
my heart goes out to The Cook Family. My prayers and thoughts are with you all.
I have watched Seths' story from the beginning and I loved his spirit.  My thoughts and prayers are with Seths' family and friends in the WONDERFUL town he grew up in.  
God Bless You Seth, Heaven is a happier place now that you are there.
It is always sad where a noble spirit passes on, but that is their lot, to show those of us less challenged the dignity of a life lived well in the face of what should have been overwhelming grief.  
It is always sad where a noble spirit passes on, but that is their lot, to show those of us less challenged the dignity of a life lived well in the face of what should have been overwhelming grief.  
Seth will be missed very much, he was such an inspiration for all of us. My deepest condolences to his family
Seth you are missed, and Heaven is singing it's joy, i'm sure, that you are home again.   To the Cook family, thank you for sharing his journey, his love, and his life with the world, so that we could understand a little bit better.
I have always been touched by Seth, he was a very special little man. God is surely with this family, and Seth is with Him now, fishing no doubt...I cried and cried to read of his passing, I am so sorry for your loss, but knowing that he is in a place that he looked so forward to going to should give some peace.
My prayers to the family, I remember watching the story and wondering how the heck they managed to have the strength to deal with the situation. When you read about the faith this kid had as opposed to the insane self centeredness of someone like Paris Hilton, you begin to wonder where the values of this country and it's people really should be. Give me God over money and indulgence of a spoiled nation any day of the week.
Again my prayers to the family of Seth. You really raised one fine son there...
REST IN PEACE SETH, I JUST KNOW YOU'LL BE FISHING IN HEAVEN !!!  THIS OLD WORLD LOST ANOTHER GOOD ONE, HEAVEN JUST KEEPS GETTING BETTER & BETTER
My deepest sympathy for the family. I read the story and it definetly touched my heart.May God bless your family in you time of grief although little Seth is gone, he definetly will not be forgotten.
My heart fell to the floor when I read the news...
Cook family, thank you for sharing Seth's voyage, may god bless you. Seth, maybe someday you can show me a good 'spot' to fish with our lord ?!?

    GOD bless you and thank you for letting us share a little of your wonderful sons life.I am so very sorry for your loss.
Seth was a teacher; he taught us how to look past the cover and read the book inside. What a wonderful book he was, too! I know Seth's grandpa was there to help him across that bridge to heaven, where they can fish to their hearts' content. Thank you for sharing Seth with the world, we are blessed to have known him.
Sympathy to the family and peace to the little angel. Your eternal days of flying are just beginning....
God speed Seth. Heaven has a new angel.
Keep the faith and memories alive.  May God bless him and the family during this terribly sad time.  The family is in my prayer's. I did not know him personally, however, it seems he was larger than life and will be missed!  "Happiness is anyone and anything that is loved by you"-Charlie Brown
Life is not about the number of breaths you take, but about the moments that take your breath away.  Seth understood that and fully lived it! Bravo, Seth!  You were an incredible teacher.  
My condolences to the Cook Family.. He's in a better place now.. no more suffering even tho' he made living life with an illness so easy and carefree.. The world has lost an Earth Angel but he will never be forgotten.. God Bless Cook Family..
He truly was an inspiration.  My heart and prayers go out to your family.  He's in a better place but will be missed very much by all.
 Seth, you will be missed! But never forgotten!!  Hopefully all will not forget you gave us an opportunity to see and realize what life was like and is like for not you but others that have progeria and other physical and life threathening diseases/disorders. May your smile and love for your family and friends sustain and bring them peace, you are home, no longer in pain!! I'll see you in the clouds floating by...
I have followed Seth for a long time..What a great joy and deep inspiration he was..I am so sorry to hear of his passing..But Seth will live on, as he will forever be alive in our hearts. Many are called, but few are chosen..I am so thankful that Seth was one of those chosen..May God be with you know and always..Blessings to the family..When I see a star twinkling at night, I'll be thinking of you Seth.
((HUGS))
Heaven has a new angel!My dog died the same day, I would like to think that my dog found Seth in heaven.
I'm also sure he was greeted by his grandpa too.
May God bless all of his family...  
We shall find peace.  We shall hear the angels.  We shall see the sky sparkling with Diamonds - Anton Chekhov.  
Seth may have been dealt a different hand in life but he ended up with a Royal Flush!  His physical heart gave out but his real heart will live forever!!  My heartfelt sympathies to the family for his passing from this life.  He will be greatly missed, but you will get to see him again just like he is seeing his grandfather now.
I watched the program about Seth and was touched deeply when he said he couldn't wait to get to heaven.  My deepest sympathy to the family for your loss but at the same time thank you for sharing your
your angel with the nation.  I agree with with Jo Hargraves statement.
I enjoyed watching stories about Seth. His spirit is something to admire. My heart goes out to his family and loved ones.
God bless you Seth and your family.  I may have never met you, but I feel as though I lost a great friend.  Your courage and beautiful smile have really touched me.  Heaven needed another angel.  Let me know where the good fishing spots are when I get there.  Take care Mom and Dad Cook. You are in my prayers
Gods speed, Seth.....may your star shine brightly on all of us............
God Bless this young man
I watched the show about Seth's story on Dateline.....He surely brought a tear to my eye..not for pitty, but for how strong he was and how thing young soul just seemed to inspire me as a adult that when life goes thru tough times..you can always make it thru if you anything with great spirits..To the parents and family of Seth..although he has made his journey to a place he will be always fun-filled, know he touched even a strangers heart and many others as well...may he live within you forever...
I too am saddened by this couragous boy's passing. I send compassion and love to his family.  They are the proud parents who raised this little man to be a visionary for others.  He is released from a sick little body and now resides as a Spirit of light and love.  May others gain true meaning of life from  his short but amazing, eventful, brave life to all he touched.  He's a real hero.  And now Heaven has the hero!
When I read his story it made me smile. He will be miss by all. He's now one of Gods children. To the family be happy and think of the happy times you all had with him. He was ready to go. God be with you all.
God bless and keep you sheltered in his arms.
Seth has his gummi-bears and chocolate rabbits now.
My prayers are with your family. We can all learn from Seth how to live life. We need to learn acceptance like he did and we would all have better lives. Seth will always be with you and with all of us. May God bless all of you and grant you the strength one day at a time.    
to the family! i am soso sorry for your lost of a wonderful young man! and seth i hope you are up there fishing with your grandfather!!! i know you are in a much better place wacthing down on all! you will be turly miss!
God bless you in your most difficult time.  May the sweet memories of Seth be your greatest comfort.
My deepest sympathy to the family.  May God Bless you and your family in this time of grief for Seth.
My condolenes to the family for I know they will surely miss Seth, but I ask them to please remember that he is not gone, he has just gone ahead.  God bless you and comfort you and keep you in his love.
Rest in Peace! I pray that your family hills while grieving in the name of the lord for you have not lost a son, friend, nephew, or brother, but you have gained an ANGEl.
Rest in Peace, Seth.

You were a remarkable person and inspiration to so many to accept what life gives each of us.
I had not heard much of Progeria until your story and life became public. You have helped so many with Progeria, and those with other illnesses for which there is no cure.

Bless you real good. I know you are happy and whole now.
Hi Seth, i remember "meeting" you on Larry King Live. you were one brave kid. My heart goes out to your family. you were very much loved and an inspiration to us all. God has his angel now.
Grandpa, spoil Seth at every oppertunity.

Cook family, my eternal thanks for sharing your son with us.
God bless you and your family.  
God Bless Seth and his family!!!!


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